That can be a loaded question if I may be transparent. Mainly, this page is about my story of being a parent of not one, but two children with life-threatening medical conditions & disabilities. What that looks like for us, things both my kids & I have been through along the way, how we got through them, and how we are going to keep getting through them. It is about what our day-to-day lives look like: trials, trauma, and triumphs. I created this website for all of us, every single one of us who understand what a day in our life is like. It’s also about the parents that are just starting this journey and for the parents who don’t yet know they will eventually be part of a tribe they didn’t ask to be.

A little background about what inspired me to finally sit and create this website: I have been a mother for about 10 & a half years now, my beautiful, spunky daughter was born in December of 2015. The birth went smooth, she had no complications, everything went how it was supposed to for the most part except from the day she got home, I ended up doing everything and getting through everything alone. I went through postpartum alone, the healing alone, the leaking alone, the tears alone, the sleeplessness- alone. By the time she was 2.5, I decided to leave and raise her…you guessed it, alone. It was the best choice I ever made for us both. Fast forward to when she was 7, her behavior was getting more intense, her hunger was increasing, she was thirsty ALL the time, and she was in and out of the bathroom. I didn’t know any better, I assumed she was growing and the food/drink needs were increasing by nature. Her dads’ parents had been asking to take her to Disney for years, this was the year I finally said yes. They get back and he pulls me aside to tell me that I should take her to the doctor because the symptoms she was showing over the trip, were familiar to his parents. Her uncle, his brother: is a Type 1 Diabetic since childhood. I knew nothing about Diabetes at the time & she was diagnosed a few days later on October 25, 2023. I have been a “T1D Mom” ever since. Is it easy, even 3 years later? Absolutely not but we understand it and we live with it as best we can. Fast forward again to these past couple years, I met someone who is simply amazing. He stepped up & stepped right into the role, not just as a solid father figure, but as a step-parent to a child with Type 1 Diabetes. He wears that proudly.

Here is where life took yet another unexpected turn, we ended up pregnant last year and we had our son this past June 2026. Pregnancy was a roller coaster, at my 20 week gender appointment, my MFM doctor had broken the news to me that pictures of the babys heart were showing alignment with Tetralogy of Fallot (an issue in 4 different spots of the heart). Devastated, but we were going to keep going. We prepared ourselves for 20 weeks that the baby might need open-heart surgery to repair the hole in his heart, we were as mentally prepared as could be. I go into labor June 15th, halfway through the birth, there is something wrong. Emergency C-Section for me, and resuscitation for him. He was whisked away to the NICU where he spent a month before transferring to Boston Childrens Hospital for another 2 months to follow. The silver lining? He didnt have ToF and just VSD (Ventricular Septal Defect- a hole in the lower chambers of his heart) that is actually now closing on its own. We were prepared for a chaotic birth for him, but it ended up being things that we DIDN’T prepare for. I will touch base on the journey in my upcoming blogs.

So, when you ask me what my website is about…it is about everything that we have to endure as parents of children with medical needs. It is about helping people, it’s about coping, it’s about mental health, it’s about advice, it’s about me knowing I am not alone in this & I want to share with you my story, just as I want you to be able to share yours with others. It’s your story to tell, it’s your insight to give to others who may one day face a similar situation and be as lost as we all were when our kids first got their diagnoses, no matter what those diagnoses are. We all have a place on my website and I am excited to create a space that you can all get what you need in times of uncertainty. This website is going to be about the good, the bad, the funny, the sad, the tips, the tricks, the hope, the help, and everything in between.